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Recommendation How to Prevent Risk of Infection During Cancer Treatment

Hi, I'm VictoriaO

Keeping anti=bacterial wipes in the car cup holder is a must. Every time I get in the car, I see and use them.

  • Mon Sep 17, 2012
Hi, I'm Nancy L.

I FOUND WASHING MY HANDS CONSTANTLY WAS A MUST AND STILL IS.

  • Sat Sep 29, 2012
Hi, I'm Coy F.

After chemo, I find myself urinating frequently for two of three days

  • Sat Dec 15, 2012
Hi, I'm Georgiegirl

Instant hand sanitizer in every room of ur home.it reminds houshold and other to use.

  • Fri Feb 15, 2013
Hi, I'm Helga W T.

I have been diagnosed with pancreatic cancer. I had whipple surgery 5 weeks ago. Starting Chemo on Thursday. Anybody on this board with same diagnosis. I am just so down and overwhelmed.
Thank you.

  • Tue Feb 19, 2013

I had a right radical mastectomy in 2006 and was hospitalized 5 days after my surgery due to no help at home. I did get home healthcare when I got home and made certain the nurses were careful to wash their hands carefully before starting any type of treatment, but it turns out I contracted a necrotic infection at the surgical site and was placed on very heavy anyibiotics to no avail. I had to return to surgery two weeks following mastectomy. The surgeon told me the infection was due to a complication of the biopsy I received after diagnosis, before having my nastectomy. The doctor who performed the biopsy had shoved the needle into mybreast

  • Sat Feb 23, 2013

The surgeon who performrd the biopsy had shoved the needle in with such force it created a pool of blood, and caused the area to become infected. My chest turned black and it was very painful, and inspite of constant pleas by my home health nurse my surgeon did not see me until I insisted. I spent another four days in the hospital. I had called hospital adminustrator followinv the biopsy to report the treatmengt I bad received by the radiology physician and she was disciplined harshly by the hospital. My point is, if at any time during treatment you receive inadequate care by any member of your team, it is your responsibility to make certain it is reported.

I still have complications , and believe it is a direct result of thd biopsy I received. My chest is grossly disformed making reconstruction almost impossible due to the extra tissue that had to be removed during the second surgery to clean up the infection. I have always felt bitter because of the error that was made and will always have a hard time forgiving the radiologist for being angry because I was unable to position my body in a very complicated position due to a hip replacement performed a year prior, but I will never regret reporting this to the proper person.

There are many who go eithout

  • Sat Feb 23, 2013

There are many who besitate to report inadequate treatment, but I learned the hard way that some errors cannot be corrected easily and human error is not only unfair, but can last a lifetime.

Thank you for listening and take good care of yourselves.

  • Sat Feb 23, 2013
Hi, I'm Nancy L.

I agree with the comments about washing your hands and keeping hand sanitizer handy. I also wore a mask when anyone had a cold or was coughing or sneezing. Praise God I have not had any infections. My chemo ended 2 years ago and am still having a med every 8 weeks in my port. Being careful cannot be over-emphasized.

  • Sun Feb 24, 2013
Hi, I'm Al bevvino

Helga

I had whipple surgery in April 2012. I started 12 treatments of FOLFOX chemo on May 17th 2012. Completed treatments on October 28th. While it was a tough 6 months, it was the best decision I ever made. My side effects were not too bad and I made sure that I exercised everyday and made sure I ate all the time. I lost my appetite and taste buds from the start, but they returned when treatments were comlpleted. Good luck

  • Mon Feb 25, 2013
Hi, I'm Joann R G.

I was hoping to find a colorectal support in the Melbourne area. Does anyone know of one?

I completed my chemo and radiation before Thanksgiving and had surgery in January, I am currently in the fifth week of my after surgery chemo.

  • Tue Mar 19, 2013
Hi, I'm Donna R K.

I was wondering about what was being said about infection during chemo very happy to have read these discussions

  • Wed Jun 12, 2013
Hi, I'm Sharon S.

i haven’t been set up for any treatments except a beta blocker and waterpill my dr says he doesnt want to get aggressive till cancer gets aggressive. am having a hard time finding place to do bloodwork cause i cant meet my medical needy share of costso i dont know if im stil in early stages or not. i’m scared not knowing. and now my daughters boyfriend found out he needs to get treated for tb and my daughter and i both are going t get tested and treated hopefully it hasnt caused my multiple myeloma to get escalated.

  • Thu Jun 13, 2013
Hi, I'm Sharon S.

i haven’t been set up for any treatments except a beta blocker and waterpill my dr says he doesnt want to get aggressive till cancer gets aggressive. am having a hard time finding place to do bloodwork cause i cant meet my medical needy share of costso i dont know if im stil in early stages or not. i’m scared not knowing. and now my daughters boyfriend found out he needs to get treated for tb and my daughter and i both are going t get tested and treated hopefully it hasnt caused my multiple myeloma to get escalated.

  • Thu Jun 13, 2013
Hi, I'm Sharon S.

i haven’t been set up for any treatments except a beta blocker and waterpill my dr says he doesnt want to get aggressive till cancer gets aggressive. am having a hard time finding place to do bloodwork cause i cant meet my medical needy share of costso i dont know if im stil in early stages or not. i’m scared not knowing. and now my daughters boyfriend found out he needs to get treated for tb and my daughter and i both are going t get tested and treated hopefully it hasnt caused my multiple myeloma to get escalated.

  • Thu Jun 13, 2013
Hi, I'm Pam Derderian

My heart goes out to all of you who are suffering so much. I have CML, and have responded well to Gleevec; I just feel so badly for all of you who have to go through so much. I tell myself to be thankful for each day; each day a new gift. I think that we all have to learn to practice gratitude when we can, and always hope for the best!

  • Sat Jun 15, 2013
Hi, I'm Roonie

So many good organization are in place to help all of us navigate a new cancer
diagnosis or treatment. American Cancer Society and Cancer Care matched
me with someone with the same illness
so we could talk on the phone. Each
of the volunteers was so kind and
helpful with questions I had. Really
helped me. Richard Bloch of H & R Bloch
has another wonderful foundation that
wants to help everyone out there. It
helps not to feel quite so alone.
Thinking of all of you.

  • Sat Jun 22, 2013
Hi, I'm Deborah R.

I was recently diagnosed with Non Hodgkins lymphoma and I will soon begin chemo and radiation.I am nervous and unsure but I trust my doctor and place my life in Gods hands!Strange I never thought I would get cancer !I am still in schock!

  • Sat Jun 29, 2013
Hi, I'm Wilma J M.

I also have Non Hodgkins lymphoma. I am not a candidate for radiation however, because the lymphoma has already spread to three different areas (stage 4). My oncologist is watching my blood work and other symptoms to decide when to start chemo. I am a RN and I am used to caring for others so this is a new experience for me. I didn’t think it would be me with cancer!

  • Sat Sep 28, 2013
Hi, I'm Judy

I am also a nurse. It is really difficult to be on the other side of the fence now with stage 4 colon cancer. The treatment I am going through is not fun, but I’m hopeful to buy a little more time. Today I started loosing my hair.. I guess a wig is in. The picture. I’m taking one day at a time!

  • Thu Nov 21, 2013
Hi, I'm Michael F.

Hello to all. I am posting because I am Christine, Mikes wife, and I am reading the posts of stage 4 colon cancer (what he has) and I saw the posts of the nurses. My husband has had 3 surgeries, the 2nd was major, with the reversal of the colostomy, the bowel dissection, and the ileostomy. He had a huge open wound, which was draining because he had omental necrosis which was just horrible. At the end of it he was calling me his Doctor, I changed hundreds of bandages. Thank God we got through that, it was just terrible. I believe your medical training will make you a lot less scared, because I was just terrified, but now I am much calmer.
I wish you all well, and please take care of yourselves, take it easy this Holiday season. There is a lot going on, and you have to pick and choose your activities. Let somebody take care of YOU for a change.

  • Fri Nov 22, 2013
Hi, I'm Tina L B.

Found out in Nov that I had breast cancer. Had a lumpectomy and my sentinel node taken out. Was lucky that it was caught early and it did not spread to any of my lymph nodes. Started chemo yesterday and so far no side effects from it. Having a hard time with the hair loss thing. I know that this is the last thing I should be concerned about. Would appreciate any comments on how some of you handled your hair loss

  • Thu Jan 16, 2014
Hi, I'm DONNA A S.

I started losing my hair two weeks after my first chemo treatment. It was very hard at first seeing my hair fall out in clumps every day and seeing it all over my pillow at night. I had my husband take the rest off. I feel that your hair will grow back six months after treatment stops. It is better to lose your hair than lose your life. God has helped me so much through my journey with breast cancer just keeping things positive along with my husband, family and friends. Get yourself a nice wig. You do get one free wig. Hang in there and you will be fine. Keep the faith. Donna

  • Sat Aug 8, 2015
Hi, I'm Amy D W.

I have multiple myeloma. Initially I was on cytoxin, dex. and took weekly velcade shots for 10 months. Light chain nos. were low in July2016 so I had my healthy stem cells harvested and frozen for future use. Stayed off of chemo for three months but nos. went up again so I am now on revlimid, dex, and ninlaro. Trying to avoid a stem cell transplant. Anyone else going through this? I am aware of a new immune therapy drug that was approved for mm. Diplova I believe. If you are using this new immune therapy drug , I would like to hear from you.

  • Sat Jan 21, 2017
Hi, I'm kentj

Beware that you might also get shingles with your immune system low. The risk is low, but remember you could get shingles if you have previously had chicken pox. If you get it, get to the doctors quickly to reduce the severity of long term nerve pain.

I had a bad case of shingles that left me with nerve pain on one side of my body just below the rib cage. That was over 9 years ago and the pain is still there.

Learn the signs of shingles and get to your doctor quickly to reduce the chance of prolonged nerve pain.

  • Sun Jan 29, 2017
Hi, I'm Joey G.

Interesting to see this now. Lost half my left quad (vastus medilais oblique) because it had been taken over by an enormous tumor. I required radiation, which I tolerated well enough, but the burns that showed up about 2 weeks after the sessions had stopped, would easily be identified as 2nd degree, and were quite large. Two rather long subsequent hospitalizations were because of a host of common bacterial infections, at least one antibiotic resistant, that had opportunistically taken up residence. Ironically, they were more immediately life threatening than the cancer had been, and the recovery, after a surgery to remove a mass of infectious material took a good year and a half. One always has concerns about infection when going into the hospital. My team was vigilant and warned me what to look out for, if not what to expect. I still don’t have a clue as to what I could have done to prevent them. Just a heads up for anyone with large area radiation burns.

  • Sun Feb 5, 2017
Hi, I'm JAMIE

HELLO
I AM A MS PATIENT AND WHILE HAVING A REG BLOOD TEST MY DOCTOR SAID MY KIDNEY FUNCTION WAS OFF AND JUST FOR PRECAUTIONARY REASONS WANTED ME TO HAVE A REPEAT. IT CAME BACK THE SAME SO HE SENT ME FOR A ULTRASOUND AND THAT CAME BACK WITH A BLACK SPOT ON MY KIDNEY. THEN HE SENT ME FOR A CT SCAN AND THEN SAID THEY FOUND A MASS ON THE UPPER PART OF ONE OF MY KIDNEYS AND A CYST ON THE OTHER. I AM NOW WAITING FOR AN APPOINTMENT WITH AN UROLOGIST TO SEE ABOUT FURTHER TESTING BIOPSY IS NEEDED. IS OR HAS ANYONE GONE THRU THIS? AND DOES ANYONE HAVE MS?

  • Thu Aug 9, 2018