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Adenoids cystic carcinoma

Hi, I'm Diana M.

Anybody getting treated for adenoid cystic carcinoma

  • Post #1
  • Mon Jun 25, 2018
Hi, I'm Kenneth R M.

I had parotid gland tumor and gland w nodes removed 2 were positive in gland the rest in neck were negative about to do radiation no chemo …mammary secretary analog carcinoma……i dont want radiation ugh!

  • Post #2
  • Thu Jun 28, 2018
Hi, I'm Molly E B.

11 years out from adenoid cystic carcinoma of the breast. Some very active Facebook groups if you need some insight.

  • Post #3
  • Sat Jun 30, 2018
Hi, I'm Jacqueline M.

Was diagnosed in January of last year, had lumpectomy followed by 33 treatments of radiation. Was stage 2 with no lymph nodes affected. No chemo as it usually has no affect for this type of cancer.

  • Post #4
  • Sun Jul 1, 2018
Hi, I'm Lisa Marie

Hello. I have Squamous cell carcinoma. In my
Lymph node in neck. Could not find source.
I had 35 radiation treatments.
It’s been 2 weeks from last treatment. I still feel the same
Way, with fatigue, no taste, dizzy, phlegm, all the same symptoms.
I wish I could taste food!!!
I make myself eat, so I don’t get sick or feeding tube.
Is anyone else in the same situation?

  • Post #5
  • Sun Aug 5, 2018

Sounds like the same thing I am being treated for. 8 treatments of 33 to go. I started noticing changes in my tast and smell last week. Not too much fatigue, so far. I just read the article under Education about Managing Taste and Smell issues. There were several suggestions on Food prep, oral care etc. You might want to check it out.

  • Post #6
  • Mon Aug 6, 2018
Hi, I'm STEPHEN R O.

I completed 33 radiation treatments plus chemo at the end of 2016. Fatigue issues didn’t last long for me perhaps because I forced myself to consume as many calories as possible – plenty of smoothies and Ensure Plus to supplement the soft solid foods I was able to swallow. Dry mouth is still a reality for me, but has improved over time. My sense of taste was also significantly impacted, but that has improved as well. I can’t say that my taste returned completely, but I enjoy eating again.
Hang in there. It should get better. Good luck.

  • Post #7
  • Tue Aug 7, 2018
Hi, I'm WILLIAM J S.

Just finished radiation a couple of months ago as a follow up to squamous in my parotid gland but not in lymph nodes. Had same taste issues but no basically back to normal. Hope you have same result

  • Post #8
  • Sun Aug 12, 2018
Hi, I'm Lisa Marie

Thank you all, for the responses. The taste issue was a good comment.
I’m hoping I get my taste back!! I will eat 2 of everything. Lol
Good luck. I have my 1 month follow-up in 2 weeks. Will see how that
Will go ?

  • Post #9
  • Mon Aug 13, 2018
Hi, I'm Billc.
My last treatment Jan 18th 2018 , I still have very little taste and it’s so hard for me to eat because of the dry mouth . Last night I had a hamburger for supper took over an hour to eat it . Lots of water just to get it down . But everyone is different I guess and wish you the best of luck . Billc.
  • Post #10
  • Mon Aug 13, 2018

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